Spinal Muscular Atrophy

What Is SMA?

Spinal muscular atrophy, or SMA, is an inherited condition that causes nerve cells in the lower part of the brain and spinal cord to break down and die. When this happens, the brain stops sending signals to the body’s muscles.

Babies with SMA can have difficulty crawling, walking, or even breathing, and older kids can have trouble getting around and mastering simple tasks of everyday life, like combing their hair.

Luke's Story

Luke’s birth and first few months of life were all very normal. But after those first few months, we began to notice how inactive he was compared to other infants his age and that he didn’t seem very interested in attempting typical infant milestones, like rolling over.

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SMA Resources

Below you will find a list of resources that have been invaluable to us in learning about SMA. Please let us know if there are resources you think belong on the list.

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