Spina Bifida

What Is Spina Bifida?


Spina bifida is a type of birth defect called a neural tube defect. It occurs when the bones of the spine (vertebrae) don’t form properly around part of the baby’s spinal cord.

Lucy's Story

Why is Mr. Radiologist concentrating on the same spot over and over and over again?  I’m no OB guru but I’m smart enough to know the spot in question is her brain, Then Mr. Radiologist, in all his professionalism, tells us we’ll need to consult with our doctor because there is something he sees that he’s not okay with.

Kadence's Story

October of 2009 changed our lives and our story forever. My mom came with me to the 20 week ultrasound for a sneak peek at her first grandchild. Kadence played with her lips through the entire scan and was absolutely the most amazing thing I’d ever seen! Mom and I noticed the tech focusing on Kadence’s back, head and kidneys. She took several pictures of those areas placing them in that “other” pile, separate from the ones we would take home.

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Spina Bifida Resources

Below you will find a list of resources that have been invaluable to us in learning about Spina Bifida. Please let us know if there are resources you think belong on the list.

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