Cerebral Palsy

What Is Cerebral Palsy?

Cerebral palsy, also referred to as CP, is a disorder that affects body movement and muscle coordination. Even though it affects the muscles in our bodies, it is not caused by problems in the muscles themselves or the nerves. Cerebral palsy is caused by the failure of the brain to develop properly during pregnancy or damage to the brain, either before, during, or after birth. In fact, the word cerebral means having to do with the brain, while palsy means muscle weakness.

It is important to know that, while the severity of this disorder has a wide range (from a slightly awkward walk to whole body weakness requiring a wheelchair), cerebral palsy is usually classified into four categories.

Learn more about CP by clicking here. 

Aidrian's Story

On September 8, 2008 we were told that the babies would need to come out early because Isabel had Twin-Twin Transfusion Syndrome.  One baby, the one smaller than the other (often called the donor twin) does not get enough blood while the larger twin (often called the recipient twin) becomes overloaded with too much blood.

Shane's Story

Shane was born nine weeks early and weighed just 3 pounds 1 ounce. He was two weeks old and still in the hospital when he had a stage four brain bleed.

Related Articles

Slant Boards

Slant boards provide an alternative surface on which a child can practice writing.

Communicating with a Non-Verbal Child

At times it can take months to discover what each child is trying to communicate, sometimes longer.

CP Resources

Blog & Websites

Cerebral Palsy Forum 
This online discussion board covers topics and questions on legal matters, treatments, testimonials and personal discussions about coping with CP.

Cerebral Palsy Family Network (CPFN)
The CPFN provides sources of legal and medical information concerning CP issues. Their website includes blogs, articles, downloadable care plans, plus free medical and legal resources. Additionally, there is a searchable state-by-state database containing almost everything available on the subject.

Origins Of Cerebral Palsy
This website offers an abundant amount of resources, including information on CP, legal material, publications, blogs, chat rooms and forums.

Organizations

United Cerebral Palsy (UCP)
Created in 1949 by a group of parents determined to make a difference in the lives of their children and others afflicted with the disorder, the UCP has grown to be one of the largest non-governmental organizations.

Cerebral Palsy International Research Foundation (CPIRF)
The CPIRF provides funding for research and education in the areas of finding causes, cures and care for persons with CP and other disabilities relating to CP. Their goal is to develop methods for prevention of CP, as well as find improved treatments and therapies.

Support Groups

Cerebral Palsy Network(CPN)
With the goal of promoting unity, power and empowerment, the CPN is a network offering support and resources worldwide in the hopes of making a difference.

Cerebral Palsy Meet-up Group
One of the most difficult dilemmas facing people and families with CP is being able to connect in person with others who can relate to what they’re going through. With the meet-up website, they can find groups of people to get together with who share their same interests.

Daily Strength Cerebral Palsy Support Group
The Daily Strength provides an abundance of insightful information.  This information includes discussion boards, reviews on top treatments,  answers to health questions, discussions and various blogs.

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