It was August 2008 and my wife Isabel was 4 ½ months pregnant. Since the original doctor we were seeing was out of town, we saw a different doctor for a routine checkup. After measuring Isabel’s stomach size, which seemed to be larger than expected at that time, he joked around about the possibility of twins. To our surprise, the sonogram revealed to us that we were having twin girls. Because of the way the babies were growing, we were referred to a specialty doctor. On September 8, 2008 we were told that the babies would need to come out early because Isabel had Twin-Twin Transfusion Syndrome. One baby, the one smaller than the other (often called the donor twin) does not get enough blood while the larger twin (often called the recipient twin) becomes overloaded with too much blood. In an attempt to reduce its blood volume, the recipient twin will increase the urine it makes creating much amniotic fluid around this twin. At the same time, the donor twin will produce less than the usual amount of urine and the amniotic fluid around it will become very low or absent. Before having to be admitted to the hospital the first week in October, Isabel had to have amniocentesis done six times; extracting the amniotic fluid from the sac of the fetus to reduce the pressure.My beautiful wife Isabel, pregnant with our twin girls.
We were dealing with a lot at that time. We had no family in town, but we did have a few friends visiting us. With Isabel in the hospital, I was working a security job on the graveyard shift from 11:00pm until 7:00am then taking a short power nap for an hour before going to my new job training from 9:00am until 5:00pm. To prevent further jeopardy, the doctor made the decision to take the babies out early by c-section at 27 weeks 2 days / 14 weeks early. On October 14th, 2008 at 12:35 pm Aidrian Josephine Rosser and Annabel Deena Rosser were born. Aidrian came out first weighing 1 lb 3 oz measuring 11 ¾ inches, and Annabel Deena Rosser was second, weighing just 13 oz measuring 11 inches. To give you an idea of how tiny they were, the thumb ring I wore could easily slide to the top of their hip and was still loose. Their heads were the size of a lemon!
Our final snapshots right as our lives would be forever changed…
Four days after they were born, both twin girls had perforations in their intestines and emergency surgery was done. Drain tubes kept their bodies from getting toxic and becoming septic. Unfortunately, despite all the intensive care and medicine provided, Annabel’s kidneys were underdeveloped and never started working. She died after 19 days on Sunday, November 2, 2008. We laid her body to rest on Wednesday, November 5th in the Garden of Angels at New Haven Cemetery in Broken Arrow, Oklahoma.
Because the initial surgery did not work, Aidrian had an ileostomy done during the first week in November. The end or loop of the small intestine was brought out onto the surface of the skin through a surgical opening so that the waste is collected in an external pouching system. This was necessary because Aidrian’s colon had been partially removed. While Isabel and I were anticipating Aidrian’s release from the hospital over the next few months, we were briefed by one of the doctors of the Neonatal Intensive Care Unit (NICU) about Aidrian‘s condition. As a result of being born early as a preemie, the doctor told us all the possible consequences and symptoms that Aidrian could experience. Digestive and waste problems could develop as a result of short bowel syndrome when Aidrian had 30% of her intestines removed. She could have intrauterine growth retardation or stunted growth due to Twin-Twin Transfusion Syndrome. As a result of her premature birth, Aidrian had at least three detected brain bleeds that caused damage and softening of the brain, a white matter injury known as periventricular leukomalacia (PVL). Only time would tell what motor control problems or development delays would occur from having PVL including cerebral palsy or epilepsy.
This information did not shake us too much because we had already personally experienced God’s awesome healing power in our lives. When my other daughter Aleah was born, her brain waves were flat-line in response to her hearing test and the doctor said that she had underdeveloped ear drums or extensive nerve damage in her ears. Only a specialist could help us after a few weeks. The doctor agreed to pray for Aleah that Jesus would heal her. Within 15 minutes she passed a retest and has never had any ear problems since (she is now 8 years old). On another occasion, Aleah, just 2 years old at that time, had stuck her hand in a small door of an electrical box at her Day Care Center and grabbed a wire that was not capped. Before I could race over there and find out how bad she was shocked and burned, my call to the Oral Roberts Ministries Prayer Line help assured me of God’s protection and healing. Thank you Jesus for your protecting angels & healing power!
Two years earlier before little Aidrian was born, Isabel was diagnosed with micro adenoma, a small pea-size brain tumor that was causing prolonged headaches. Most people with this condition have difficulty getting pregnant or cannot have children at all. We prayed for a miracle and after just two months of treatment, the tumor had vanished! Not only that, Isabel got pregnant right away!
When Aidrian was healed and well enough, the ileostomy was closed up on February 7, 2009. After five months of being in the NICU, she improved so well that we finally got to take her home on February 18, 2009. She weighed a whopping 5 lbs!
It wasn’t until later in April that the pediatrician referred us to a heart specialist because the heart murmur Aidrian had seemed to be getting worse. We discovered that Aidrian had two other major problems. There was a hole in her heart that never closed, referred to as an Atrial Septal Defect (ASD). This is a hole in the atrial septum, or muscle wall, that separates the right and left atria, or upper chambers of the heart. This results in shortness of breath, heart palpitations, or develops into congestive heart failure. Aidrian also had pulmonary stenosis, a narrowing of the pulmonary valve opening that increases resistance to blood flow from the right ventricle to the pulmonary artery. Aidrian’s type of pulmonary stenosis was classified as supravalvular which was a narrowing of the artery above the valve. Symptoms include chest pain (angina), shortness of breath, and fainting. Adrian showed signs of low energy and took very long naps. After Aidrian became stronger, open-heart surgery was scheduled for August 27th, 2009. God blessed us with a world famous heart surgeon, Dr. Hisashi Nikaidoh who was assisted by Dr. Mary-Jane Barth. The surgery was a success! Aidrian was smiling and moving around the very next day!
Just a couple of days after her heart surgery, Isabel and I noticed Aidrian having twitches similar to the same symptoms of hiccups. Before being released to go home from heart surgery, a neurologist determined that Adrian had myoclonic seizures. This has been caused by PVL and she has been diagnosed as having cerebral palsy. The seizures are triggered by over stimulation and Isabel and I see them happen every day. They are very noticeable when Aidrian first wakes up, when she gets sleepy, when is exposed to very bright lights or loud noises, or as she begins to feel the warm water of her bath or when she takes the first few bites of food. With the help of medication and diet, we are working hard to get the seizures under complete control so that Aidrian can be healed of them for good.
Despite the circumstances and the doctor’s reports, our faith, along with the help and support of Aidrian’s school, the Little Light House, enabled us to endure the hardships that were ahead. Since her first surgery, Aidrian has completed seven more surgeries including open heart surgery to fix a hole, valve, and artery, a VNS implant to diminish myoclonic seizures, a G-Tube to increase weight gain, and double hip reduction to fix her hip out of socket. Through all of this, the LLH helped Aidrian maintain her “Ministry Of Joy.” A lot of times she laughs in her sleep and usually wakes up smiling every day. Shots at the doctor’s office don’t bother her; sometimes they make her giggle. At 3 years old, she has won 15 crowns and trophies in beauty pageants, mostly just by photo entry. Her smile is infectious. Isabel and I have observed Aidrian develop great improvements both physically and cognitively. She has gained strength in her muscle coordination; and we have the confidence that she will eventually achieve the goal of becoming more mobile on her own. She has become more alert and engages more with those around her. She is getting better with choice selection. With the same technology as used by a former LLH graduate, Keith Boyd, the equipment that the LLH will help Aidrian acquire will enable her to greatly expand her communication with people. The Little Light House has definitely demonstrated this over and over again in our entire family, and we hope to demonstrate the same to you:
Adrian today, our happy, beautiful little girl.